List of Abbreviations
List of Contributors
Section 1: The Worldwide Status of Palliative Care
1.1: Sheila Payne and Tom Lynch: International progress in creating
palliative medicine as a specialized discipline and the development
of palliative care
1.2: M.R. Rajagopal and Reena George: Providing palliative care in
economically disadvantaged countries
1.3: Liliana De Lima and Eduardo Bruera: Essential medicines for
palliative care
1.4: David C. Currow and Stein Kaasa: Policy in palliative care
Section 2: The Challenge of Palliative Medicine
2.1: Nathan I. Cherny: The problem of suffering and the principles
of assessment in palliative medicine
2.2: Megan B. Sands, Dianne L. O'Connell, Michael Piza, and Jane:
The epidemiology of death and symptoms: planning for
population-based palliative care
2.3: Paul Glare, Christian T. Sinclair, Patrick Stone, and
Josephine Clayton: Predicting survival in patients with advanced
disease
2.4: Karen E. Steinhauser and James A. Tulsky: Defining a 'good'
death
2.5: LaVera Crawley and Jonathan Koffman: Ethnic and cultural
aspects of palliative care
2.6: Thomas J. Smith and J. Brian Cassel: The economic challenges
of palliative medicine
Section 3: Service Delivery Issues in Palliative Care
3.1: Barry Laird: Barriers to the delivery of palliative care
3.2: Irene J. Higginson: Palliative care delivery models
3.3: Paul L. DeSandre and Karen May: Palliative care in the
emergency department
3.4: Jane Phillips, Annmarie Hosie, and Patricia M. Davidson:
Palliative care in the nursing home
Section 4: The Interdisciplinary Team
4.1: Dagny Faksvåg Haugen, Friedemann Nauck, and Augusto Caraceni:
The core team and the extended team
4.2: Karen Forbes and Jane Gibbins: Teaching and training in
palliative medicine
4.3: Deborah Witt Sherman and David C. Free: Nursing and palliative
care
4.4: Terry Altilio and Nina Laing: Social work in palliative
care
4.5: George Handzo and Christina Puchalski: The role of the
chaplain in palliative care
4.6: Jill Cooper and Nina Kite: Occupational therapy in palliative
care
4.7: Clare O'Callaghan: Music therapy in palliative care
4.8: Rosemary Richardson and Isobel Davidson: The contribution of
the dietitian and nutritionist to palliative medicine
4.9: Anne M. English: Physiotherapy in palliative care
4.10: Tim Luckett and Katherine L.P. Reid: Speech and language
therapy in palliative care
4.11: Michèle J.M. Wood: The contribution of art therapy to
palliative medicine
4.12: Jane Ellen Barr: Stoma therapy in palliative care
4.13: Anja Mehnert: Clinical psychology in palliative care
4.14: Margaret Gibbs: The contribution of the clinical pharmacist
in palliative care
4.15: Deborah Franklin and Andrea Cheville: Medical rehabilitation
and the palliative care patient
4.16: Nathan Cherny, Batsheva Werman, and Michael Kearney: Burnout,
compassion fatigue, and moral distress in palliative care
4.17: Gary Deng and Barrie Cassileth: Integrative oncology in
palliative medicine
Section 5: Ethical Issues
5.1: Frank Brennan and Liz Gwyther: Human rights issues
5.2: Timothy W. Kirk: Confidentiality
5.3: Joseph J. Fins and Barbara Pohl: Neuro-palliative care and
disorders of consciousness
5.4: Linda L. Emanuel and Rebecca Johnson: Truth telling and
consent
5.5: Richard D.W. Hain: Ethics in paediatric palliative care
5.6: Harvey Max Chochinov, Susan E. McClement, and Maia S.
Kredentser: Dignity and palliative end-of-life care
5.7: Lars Johan Materstvedt and Georg Bosshard: Euthanasia and
palliative care
5.8: Danielle N. Ko and Craig D. Blinderman: Withholding and
withdrawing life-sustaining treatment (including artificial
nutrition and hydration)
Section 6: Communication and Palliative Medicine
6.1: Thomas W. LeBlanc and James A. Tulsky: Communication with the
patient and family
6.2: Mari Lloyd-Williams and Jackie Ellis: Talking with families
and children about the death of a parent
6.3: Janet L. Abrahm, Amanda Moment, Jane deLima Thomas, and Katie
Fitzgerald: Communication between professionals
6.4: Barry R. Ashpole: Communication with the public, politicians,
and the news media
Section 7: Assessment Tools and Informatics
7.1: Afaf Girgis and Amy Waller: Palliative care needs assessment
tools
7.2: Jane M. Ingham, Helen M. Moore, Jane L. Phillips, and Russell
K. Portenoy: The measurement of, and tools for, pain and other
symptoms
7.3: Jennifer J. Tieman and David C. Currow: Informatics and
literature search
7.4: Linda L. Emanuel, Richard A. Powell, George Handzo, Kelly
Nichole Michelson, and Lara Dhingra: Validated assessment tools for
psychological, spiritual, and family issues
Section 8: Common Symptoms and Disorders
8.1: Sriram Yennurajalingam and Eduardo Bruera: Fatigue and
asthenia
8.2: Kin-Sang Chan, Doris M.W. Tse, and Michael M.K. Sham: Dyspnoea
and other respiratory symptoms in palliative care
8.3: Nancy Y. Zhu and Cynthia Wu: Anaemia, cytopenias, and
thrombosis in palliative medicine
8.4: Olivia T. Lee, Jennifer N. Wu, Frederick J. Meyers, and
Christopher P. Evans: Genitourinary aspects of palliative care
8.5: Andrew N. Davies: Oral care
8.6: Kyriaki Mystakidou, Irene Panagiotou, Efi Parpa, and Eleni
Tsilika: Sleep disorders
8.7: Jose Pereira and Jennifer Brodeur: The management of bleeding
in palliative care
8.8: Amanda Hordern: Sexual dysfunction: discussing patient
sexuality and intimacy in palliative care
Section 9: Common Symptoms and Disorders: Pain
9.1: Ruth Branford, Emily Wighton, and Joy Ross: Principles of drug
therapy: focus on opioids
9.2: R.M. Gordon-Williams and Anthony H. Dickenson: Pathophysiology
of pain in cancer and other terminal illnesses
9.3: Clare Rayment and Michael I. Bennett: Definition and
assessment of chronic pain in advanced disease
9.4: Marie Fallon and Nathan Cherny: Opioid therapy: optimizing
analgesic outcomes
9.5: Julie R. Price, Alric D. Hawkins, and Steven D. Passik: Opioid
therapy: managing risks of abuse, addiction, and diversion
9.6: Per Sjøgren, Frank Elsner, and Stein Kaasa: Non-opioid
analgesics
9.7: David Lussier and Russell K. Portenoy: Adjuvant analgesics
9.8: Robert A. Swarm, Menelaos Karanikolas, Lesley K. Rao, and
Michael J. Cousins: Interventional approaches for chronic pain
9.9: Joy Hao, Rae Lynne Kinler, Eliezer Soto, Helena Knotkova, and
Ricardo A. Cruciani: Neurostimulation in pain management
9.10: Andrea L. Cheville and Jeffrey R. Basford: Rehabilitation
medicine approaches to pain management
9.11: Julie R. Price, Alric D. Hawkins, Michael L. Adams, William
S. Breitbart, and Steven D. Passik: Psychological and psychiatric
interventions in pain control
9.12: Gary Deng and Barrie R. Cassileth: Complementary therapies in
pain management
9.13: Renée McCulloch and John Collins: Paediatric pain control
Section 10: Common Symptoms and Disorders: Gastrointestinal
Symptoms
10.1: Katherine Clark: Dysphagia, dyspepsia, and hiccup
10.2: Janet R. Hardy, Paul Glare, Patsy Yates, and Kathryn A.
Mannix: Palliation of nausea and vomiting
10.3: Nigel P. Sykes: Constipation and diarrhoea
10.4: Jeremy Keen: Jaundice, ascites, and encephalopathy
10.5: Vickie E. Baracos, Sharon M. Watanabe, and Kenneth C. H.
Fearon: Aetiology, classification, assessment, and treatment of the
anorexia-cachexia syndrome
Section 11: Common Symptoms and Disorders: Skin problems
11.1: Patricia Grocott, Georgina Gethin, and Sebastian Probst: Skin
problems in palliative care
11.2: Mark R. Pittelkow, Charles L. Loprinzi, and Thomas P.
Pittelkow: Pruritus and sweating in palliative medicine
11.3: Vaughan Keeley: Lymphoedema
Section 12: Issues in Populations with Cancer
12.1: Nathan I. Cherny and Stein Kaasa: The oncologist's role in
delivering palliative care
12.2: Dirk Schrijvers: Disease-modifying therapies in advanced
cancer
12.3: Peter J. Hoskin: Radiotherapy in symptom control
12.4: Brian Badgwell and Robert S. Krouse: The role of general
surgery in the palliative care of patients with cancer
12.5: John H. Healey and David McKeown: Orthopaedic surgery in the
palliation of cancer
12.6: Tarun Sabharwal, Nicos I. Fotiadis, and Andy Adam:
Interventional radiology in the palliation of cancer
Section 13: Cancer Pain Syndromes
13.1: Nathan I. Cherny: Cancer pain syndromes: overview
13.2: Lesley A. Colvin and Marie Fallon: Cancer-induced bone
pain
13.3: Nanna Brix Finnerup and Troels Staehelin Jensen: Management
issues in neuropathic pain
13.4: Victor T. Chang: Visceral pain
13.5: Martin Chasen and Gordon Giddings: Management issues in
chronic pain following cancer therapy
Section 14: Cancer-Associated Disorders
14.1: Augusto Caraceni, Cinzia Martini, and Fabio Simonetti:
Neurological problems in advanced cancer
14.2: Mark Bower, Louise Robinson, and Sarah Cox: Endocrine and
metabolic complications of advanced cancer
14.3: Carla I. Ripamonti, Alexandra M. Easson, and Hans Gerdes:
Bowel obstruction
14.4: Sharon Merims and Michal Lotem: Skin problems in palliative
medicine
14.5: Barbara A. Murphy, Lauren A. Zatarain, Anthony J. Cmelak,
Steven Bayles, Ellie Dowling, Cheryl R. Billante, Sheila Ridner,
Kirsten Haman, Stewart Bond, Anne Marie Flores, Wisawatapnimit
Panarut, and Bethany M. Andrews: Palliative issues in the care of
patients with cancer of the head and neck
Section 15: Issues in Populations with Non-Cancer Illnesses
15.1: Meera Pahuja, Jessica S. Merlin, and Peter A. Selwyn:
HIV/AIDS
15.2: Graeme M. Rocker, Joanne Young, and Robert Horton: Caring for
the patient with advanced chronic obstructive pulmonary disease
15.3: Steven Z. Pantilat, Anthony Steimle, and Patricia M.
Davidson: Advanced heart disease
15.4: Eric Widera and Rachelle Bernacki: Dementia
15.5: Raymond Voltz, Stefan Lorenzl, and Georg Nübling:
Neurological disorders other than dementia
15.6: Fliss E. M. Murtagh: End-stage kidney disease
15.7: Nathan Cherny, Sharon Einav, and David Dahan: Palliative
medicine in the intensive care unit
Section 16: Issues of the Very Young and the Very Old
16.1: Anna C. Muriel and Paula K. Rauch: Talking with families and
children about the death of a parent
16.2: John J. Collins, Kirsty Campbell, Wendy Edmonds, Judith
Frost, Martha F. Mherekumombe, and Natasha Samy: Care of children
with advanced illness
16.3: Meera Agar and Jane Phillips: Palliative medicine and care of
the elderly
Section 17: Psychosocial and Spiritual Issues in Palliative
Medicine
17.1: Susan E. McClement: Spiritual issues in palliative
medicine
17.2: Simon Wein and Lea Baider: Coping in palliative medicine
17.3: David W. Kissane and Matthew Doolittle: Depression,
demoralization, and suicidality
17.4: Simon Wein and Limor Amit: Anxiety and adjustment
disorders
17.5: Meera Agar, Yesne Alici, and William S. Breitbart:
Delirium
17.6: Carrie Lethborg and David W. Kissane: The family
perspective
17.7: David W. Kissane and Talia I. Zaider: Bereavement
Section 18: The Terminal Phase
18.1: Judith Lacey: Management of the actively dying patient
18.2: Eric L. Krakauer: Sedation at the end of life
Section 19: Research in Palliative Medicine
19.1: Stein Kaasa and Karen Forbes: Research in palliative care
19.2: Amy P. Abernethy: The principles of evidence-based
medicine
19.3: John T. Farrar: Understanding clinical trials in palliative
care research
19.4: Kate Flemming: Qualitative research
19.5: David W. Kissane, Annette F. Street, Erin E. Schweers, and
Thomas M. Atkinson: Research into psychosocial issues
19.6: David Casarett: Ethical issues in palliative care
research
19.7: Stein Kaasa and Jon Håvard Loge: Quality of life in
palliative care: principles and practice
19.8: Tinne Smets and Luc Deliens: Health services research in
palliative care and end-of-life care
19.9: Irene J. Higginson: Clinical audit in palliative medicine
Index
WINNER in the Medicine category of the British Medical Association Book Awards 2016.
Nathan Cherny is Norman Levan Chair of Humanistic Medicine and
Associate Professor of Medicine at Ben Gurion University, Israel.
Nathan is also Director of the Cancer Pain and Palliative Medicine
Service at the Shaare Zedek Medical Centre, Jerusalem, Israel.
Marie Fallon is the St Columba's Hospice Chair of Palliative
Medicine at the University of Edinburgh and is an Honorary
Consultant in Palliative Care at the Western General Hospital in
Edinburgh, Scotland.
Stein Kaasa is Professor of Palliative Medicine at the Institute of
Cancer Research and Molecular Medicine, Faculty of Medicine,
Norwegian University of Science and Technology, Trondheim (NTNU),
Norway.
Russell K. Portenoy is Chief Medical Officer and Executive Director
of the MJHS Institute for Innovation in Palliative Care, New York,
and Professor of Neurology at Albert Einstein College of Medicine,
New York, USA. David C. Currow is Professor of Palliative and
Supportive Service at the Flinders Centre for Clinical Change,
Flinders University, Australia.
This book is an excellent resource, full with information from
leaders in the field of palliative medicine. . . An essential
textbook for all professionals working within the palliative care
arena.
*Helen Reeves, Clinical Nurse Manager, St Giles Walsall Hospice,
Nursing Times*
This is an expertly informed text that remains authoritative and
detailed. Seeing all these chapter titles in print also illustrates
how broad palliative care is, providing a useful reminder of how
many different areas and topics are part of its practice . . .
Those new to the book will find what the editors hope to have
created: an authoritative reference text with a global perspective
on the field.
*Guy Schofield, Clinical Research Fellow, Imperial College, London;
in the European Journal of Palliative Care, Vol 23, No. 1
(2016)*
Updated, well organised, and the coverage is good [...] I think it
remains the best book on palliative medicine on the market.
*Roger Woodruff; Hospicecare.com, January 2016*
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