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Better Living With Dementia


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Table of Contents

Part 1: About the Person 1. How the Brain is Affected 2. Lived Experiences of Individuals with Dementia 3. Breaking the Cycle of Despair 4. Making Life Better for Individuals Living with Dementia Part II: About Caregivers 5. Family Member as Care Partner 6. How We Can Support Families 7. Formal caregivers: Role of the Inter-professional Team Part III: About Home and Community Environments 8. The Physical Home Environment - A Neglected Therapeutic Context 9. Living in the community Part IV: About Social Systems and Policy 10. Settings and Services of Care 11. Global Efforts and National Plans 12. Transforming Dementia care Part V: Taking Action 13. Developing and Implementing an Action Plan 14. Putting It All Together

About the Author

Laura N. Gitlin is a Distinguished University Professor and Dean of the College of Nursing and Health Professions at Drexel University, United States. Her research has specialized in developing, evaluating and implementing nonpharmacological approaches in dementia care, to support family caregiving, reduce functional disability, and enhance aging in place. Her research also examines adaptive processes in chronic illness and aging, including the use of assistive devices, and environmental modifications as well as health disparities in depression and mental health care . She is also an adjunct professor, Johns Hopkins School of Nursing. She is the recipient of numerous awards including an honorary fellowship by the American Academy of Nursing, and the M. Powell Lawton Gerontological Society of America award. Nancy Hodgson is the Anthony Buividas Endowed Term Chair in Gerontology and Associate Professor in the Biobehavioral Health Sciences Department at the University of Pennsylvania School of Nursing. Her 30 plus year nursing career has been dedicated to improving the end of life experiences for cognitively and physically frail older adults. Dr. Hodgson's program of research emphasizes the examination of factors associated with quality of life in chronically ill older adults and the enhancement of science-based nursing practice with older adults at end of life. This work has helped to inform care practices for persons living with dementia and their care partners through the development of palliative care protocols that address the leading symptoms in dementia that cause distress or impair quality of life.

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