Acknowledgements. 1. Introducing Sophie who has Cerebral Palsy. 2. Using alternative communication. 3. Personal assistants and having fun. 4. Disability rights. 5. Communication at school. 6. What is Cerebral Palsy?. 7. Other difficulties. 8. Management and support. 9. Opportunities. 10. The future. 11. Disability in the community. 12. Communication passport and other communication help. 13. How teachers can help. 14. How teaching assistants can help. 15. How family can help. 16. How personal assistants and other carers can help. 17. How others in the community can help. 18. How professionals and therapists can help. Recommended websites and organisations.
A short introduction to Cerebral Palsy
Marion Stanton is a special needs teacher, AAC (Augmentative and Alternative Communication) practitioner, and mother of three children including Dan who has cerebral palsy. She has co-founded a parent-run early learning group for children with disabilities (PALACE) and has been an active member of the Alliance for Inclusive Education. She is currently lead assessor and trainer for Communication and Learning Enterprises Limited (CandLE), a non-profit organisation that supports young people with communication difficulties. Marion is the author of Understanding Cerebral Palsy, also published by Jessica Kingsley Publishers. She lives in Cumbria, UK.
This delightful book gives an insight for someone new to working
with children with cerebral palsy. I would recommend this book to
students of healthcare or special education or those recently
employed in the fields of health, social care or education. This
book provides an insight into the lived experiences of a child with
cerebral palsy and is practical, describing how to facilitate their
achievements in an empowering way.
*Dawn Pickering, Lecturer in Physiotherapy, Cardiff University,
School of Healthcare Sciences*
Marion Stanton clearly describes the importance of actively working
with individuals who experience life with cerebral palsy. Their
experience is and will always be quite unique from the experience
of another person who experiences life with cerebral palsy. This
requires an active and meaningful engagement with the person, which
is respectful of the person and of their communication. This is
what Marion Station demonstrates throughout her book. Her approach
unfortunately, remains quite unusual and all the more compelling
for that reason.
It should be a must read for people who are interested in the area
but more particularly professionals who profess to know about
cerebral palsy without their knowledge being informed by the
individuals who experience it.
I full commend the book and Marion's approach to its
compilation.
*Joe Whittaker, Chairperson with The Alliance for Inclusive
Education*
Here in we meet bright, thirteen year old Sophie, who uses a
wheelchair, and a talking computer... Sophie talks in a matter of
fact voice about the reason for her own cerebral palsy and how this
affects her... At the end is a section with suggestions for how
teachers, teaching assistants, family members, PAs, community
members and other professionals can be supportive. There is also a
list of recommended organisations and websites. All this and much
more is packed into this short book written by a special needs
teacher and mother of a child with cerebral palsy... Highly
recommended for teachers, and for students in the fields of social
care, health and education as well as young readers in primary
schools. In fact it is an excellent starting point for anyone
wanting to know more about working with individuals living with
cerebral palsy.
*Red Reading Hub blog by Jill Bennett*
Sophie is 13 and has a severe form of Cerebral Palsy. She can't
talk or use her arms or legs, but she is very smart and "with it",
an uses a VOCA, a talking computer... She explains lots about the
various forms of CP... about difficulties... There are tips for
families, for teachers and teaching assistants, for personal
assistants and carers and for professionals and therapists, and at
the very end of the book there is a comprehensive international
lists of charities and organisations for support.
*Healthy Books blog*
Ask a Question About this Product More... |