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The Caregivers Guide to Lewy Body Dementia

Although Lewy Body Dementia is the second leading cause of degenerative Dementia in the elderly, it is not well known or understood and is often confused with Alzheimer's Disease or Parkinson's. The Caregiver's Guide to Lewy Body Dementia is the first book to present a thorough picture of what Lewy Body Dementia really is. It also received a 2012 Caregive Friendly Award from Today's Caregiver magazine.

A Caregiver's Guide to Lewy Body Dementia is written in everyday language and is filled with personal examples that connect to the readers' own experiences. It includes quick fact and caregiving tips for easy reference, a comprehensive resource guide and a glossary of terms and acronyms.

This is the ideal resource for caregivers, family members and friends of individuals seeking to understand Lewy Body Dementia.
Product Details

Table of Contents

Introduction , 1. What Is Lewy Body Dementia? , 2. How Do I Find a Specialist and Get a Diagnosis I Can Trust? , 3. Slowing the Progress of Dementia, 4. Coping With Cognitive Symptoms , 5. Coping With Motor Dysfunctions , 6. Sleep Disorders and Lewy Body Dementia , 7. What Are Perceptual Dysfunctions? , 8. Drug Sensitivities and Adverse Reactions , 9. Managing Acting-Out Behaviors, 10. Coping With Autonomic Nervous System Dysfunctions, 11. Coping With Urinary Tract Dysfunctions, 12. How Do I Build a Health Care Team? , 13. Managing Legal and Financial Issues , 14. End-of-Life Issues , 15. How Do I Take Care of Myself? , Glossary , Acronyms, Online Resources , References , Index

About the Author

Helen Buell Whitworth is a retired nurse, an educator and a writer. She has served the Lewy Body Dementia Assocaition in a number of positions including, Volunteer Coordiantor for a number of years, Outreach Chairperson for the year 2007/2008 and was named the 2007 LBDA Volunteer of the Year.||Jim Whitworth's first wife was diagnosed with Lewy Body Dementia. Propelled by the lack of information on the disease, he (along with four others) co-founded the now nationally known Lewy Body Dementia Association ( He served as the first president of the lewy Body Dementia Association, served a six-year term on the board of the Lewy Body Dementia Association, still volunteers on the LBDA Helpline that he founded and is the site moderator for two Yahoo LBD caregiver support groups.


It is a valuable resource for caregivers, which include spouses and children as well as nurses and nurses' aides caring for people with dementia. Family doctors and neurologists also will benefit, as it uncovers a lot of questions that they should address during visits with these patients. This is a great resource for information about dealing with LBD, although it is not a substitute for physician advice on specific care issues, especially medications.-Doody's "Lewy body dementia is a common cause of memory, motor, emotional and behavioral disturbance in the older adult, yet many people (including physicians) are unfamiliar with the signs, symptoms, and course of the illness. This lack of information can have devastating consequences on the patient, their family, and by extension their healthcare providers. Jim and Helen Whitworth have done an outstanding job not only of collecting a comprehensive compendium on all aspects of LBD, but they also have provided a personal touch with a moving compilation of anecdotes, stories, and quotes. I commend them for their efforts and will most certainly recommend this book as required reading for all my LBD patients and their families."-James E. Galvin, MD, MPH, Professor of Neurology and Psychiatry, Director of Clinical Operations, Center of Excellence on Brain Aging. Director, Pearl Barlow Center for Memory Evaluation and Treatment, New York University Langone School of Medicine "This book will make a difference in the lives of caregivers who help to manage the LBD patient with the ever constant fluctuations and the many issues that come with the disease."-Irene Selak, a 5-year volunteer with the Lewy Body Dementia Association

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