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Children and Youth with Complex Cerebral Palsy


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Table of Contents

Author Appointments Acknowledgements Preface Opening Quote 1. Overview and Introduction Richard Stevenson and Laurie Glader 2. Functional Assessment and Goals of Management Jilda N Vargus-Adams and Andrea L Paulson 3. Hypertonia Darcy Fehlings, Anne Kawamura, Cecilia Lee and Amber Makino 4. Musculoskeletal/Orthopedic Management Mark J Romness and Victor Anciano 5. Seating, Mobility, and Equipment Needs Christopher D Lunsford and Jonathan Greenwood 6. Osteoporosis and Fractures Steven J Bachrach and Heidi H Kecskemethy 7. Feeding and Nutrition Valentina Intagliata, Eva Delaney and Mary C Bickley 8. Gastrointestinal Issues Beate Beinvogl and Munir Mobassaleh 9. Overview of Pulmonary and Sleep Disorders in Children with Complex Cerebral Palsy Umakanth Katwa and Sebastian K Welsh 10. Speech and Communication John M Costello and Elizabeth N Rose 11. Cognitive and Sensory Impairment Katheryn F Frazier 12.Challenging Behaviors, Sleep and Toileting Alisa Bahl and Kurt A Freeman 13. Mental health in Children and Adolescents with Cerebral Palsy Kerim M Munir and Ikram Rustamov 14. Pain and Irritability Julie Hauer 15. Seizures and Epilepsy in Children with Cerebral Palsy John R Mytinger and Howard P Goodkin 16. Urologic Issues Stuart Bauer 17. Adolescence and Sexuality Susan Hayden Gray 18. Transition to Adulthood Kitty O'Hare and Claudio Melo de Gusmao 19. Evidence Based Care: A Tool Chest for Helping Families Navigate Treatment Options Lisa Samson-Fang 20. Difficult Topics and Decision Making Jim Plews-Ogan and Richard I Grossberg 21. Through the Eyes of Parents Michele Shusterman, Carol Shrader and Jennifer Lyman 22. Growing up, Growing Well with Cerebral Palsy Andrew J Smith, Chelsea Strawser, Benjamin Schrader, Jaylan Norfleet and Garey Noritz Appendix: Care Tools for Clinical Practice

About the Author

Laurie Glader is an Assistant Professor at Harvard University Medical School. She trained in Developmental and Behavioral Pediatrics, ultimately focusing on children with medical complexity. Since 1997 she has directed the Complex Care Service Outpatient Program at Boston Children's Hospital (BCH), and provides patients with comprehensive medical care and developmental oversight. Her particular area of interest is children with cerebral palsy and models of care delivery. She is co-director of the large multi-disciplinary Cerebral Palsy and Spasticity Center at BCH. She is active in the American Academy of Cerebral Palsy and Developmental Medicine. Richard Stevenson is Professor of Pediatrics at the University of Virginia School of Medicine in the Division of Developmental Pediatrics, where he has been on the faculty since 1989. He is an attending pediatrician at the Child Development and Rehabilitation Center (CDRC) of the University of Virginia Children's Hospital, caring for children across the range of acquired and congenital disabilities. He is active in clinical care, education, research and administration. He is Past President of the American Academy for Cerebral Palsy and Developmental Medicine. His main interest and expertise relates to the care of children with cerebral palsy, and he has particular empathy for children with complex needs.

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