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Community-Based Participatory Research for Health


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PREFACE Contributors PART 1: INTRODUCTION: HISTORY AND PRINCIPLES Chapter 1: On Community Based Participatory Research Nina Wallerstein, Bonnie Duran, John Oetzel, Meredith Minkler Chapter 2: Theoretical, Historical, and Practice Roots of CBPR Nina Wallerstein, Bonnie Duran Chapter 3: Critical Issues in Developing and Following CBPR Principles Barbara A. Israel, Amy J. Schulz, Edith A. Parker, Adam B. Becker, Alex J. Allen III, J. Ricardo Guzman, Richard Lichtenstein PART 2: POWER, TRUST, AND DIALOGUE: WORKING WITH DIVERSE COMMUNITIES Chapter 4: Understanding Contemporary Racism, Power, and Privilege and their Impacts on CBPR Michael Muhammad, Catalina Garzon, Angela Reyes, West Oakland Environmental Indicators Project Chapter 5: Trust Development in CBPR Partnerships Julie E. Lucero, Kathrine Wright, Abigail Reese PART 3: CBPR CONCEPTUAL MODEL: CONTEXT AND PROMISING RELATIONSHIP PRACTICES Chapter 6: Socio-Ecologic Framework for CBPR: Development and Testing of a Model Sarah L. Kastelic, Nina Wallerstein, Bonnie Duran, John Oetzel Chapter 7: Youth-Led Participatory Action Research (YPAR): Principles Applied to the U.S. anD Diverse Global Settings Emily J. Ozer, Amber Akemi Piatt Chapter 8: Partnership, Transparency, and Accountability: Changing Systems to Enhance Racial Equity in Cancer Care and Outcomes Eugenia Eng, Jennifer Schaal, Stephanie Baker, Kristin Black, Samuel Cykert, Nora Jones, Alexandra Lightfoot, Linda Robertson, Cleo Samuel, Beth Smith, Kari Thatcher Chapter 9: South Valley Partners for Environmental Justice: A Story of Alignment and Misalignment Magdalena Avila, Shannon Sanchez-Youngman, Michael Muhammed, Lauro Silva, Paula Domingo de Garcia PART 4: PROMISING PRACTICES: INTERVENTION DEVELOPMENT AND RESEARCH DESIGN Chapter 10: CBPR in Health Care Settings Margarita Alegria, Kenneth Wells, Bowen Chung, Chau Trinh-Shevrin, Alisa Lincoln, Andrea Ault Chapter 11: National Center for Deaf Health Research: CBPR with Deaf Communities Steven Barnett, Jessica Cuculick, Lori DeWindt, Kelly Matthews, Erika Sutter Chapter 12: CBPR in Asian American Communities Nadia Islam, Charlotte Yu-Ting Chang, Pam Tau Lee, Chau Trinh-Shevrin Chapter 13: ENGAGED for Change: An Innovative CBPR Strategy to Intervention Development Scott D. Rhodes, Lilli Mann, Florence M. Siman, Jorge Alonzo, Aaron T. Vissman, Jennifer Nall, Amanda E. Tanner PART 5: PROMISING PRACTICES: ETHICAL ISSUES Chapter 14: CBPR Principles and Research Ethics in Indian Country Myra Parker Chapter 15: Democratizing Ethical Oversight of Research through CBPR Rachel Morello-Frosch, Phil Brown, Julia Green Brody Chapter 16: Everyday Challenges in the Lifecycle of CBPR: Broadening our Bandwidth on Ethics Sarah Flicker, Adrian Guta, Robb Travers PART 6: PROMISING PRACTICES TO OUTCOMES: CBPR CAPACITY AND HEALTH Chapter 17: Evaluation of CBPR Partnerships and Outcomes: Lessons and Tools from the Research for Improved Health Study John Oetzel, Bonnie Duran, Andrew Sussman, Cynthia Pearson, Maya Magarati, Dmitry Khodyakov, Nina Wallerstein Chapter 18: Participatory Evaluation as a Process of Empowerment: Experiences with Community Health Workers in the United States and Latin America Noelle Wiggins, Laura Chanchien Parajon, Chris M. Coombe, Aileen Alfonso Duldulao, Leticia Rodriguez Garcia, Pei-ru Wang Chapter 19: Academic Positions for Faculty of Color: Combining Life Calling, Community Service, and Research Lorenda Belone, Derek M. Griffith, Barbara Baquero PART 7: PROMISING PRACTICES TO OUTCOMES: HEALTHY PUBLIC POLICY Chapter 20: Community-Based Participatory Research for Health Equity Policymaking Lisa Cacari Stone, Meredith Minkler, Nicholas Freudenberg, Makani N. Themba Chapter 21: Improving Food Security and Tobacco Control through Policy-Focused CBPR: A case study of healthy retail in San Francisco Meredith Minkler, Jennifer Falbe, Susana Hennessey Lavery, Jessica Estrada, Ryan Thayer Chapter 22: Criminal Justice Reform through Participatory Action Research Saneta de Vuono-Powell, Meredith Minkler, Evan Bissell, Tamisha Walker, LaVern Vaughn, Eli Moore, the Morris Justice Project Chapter 23: Global Health Policy: Slum Settlement Mapping in Nairobi and Rio de Janeiro Jason Corburn, Ives Rocha, Alexei Dunaway, Jack Makau

About the Author

Nina Wallerstein, DrPH, MPH, is professor the department of family and community medicine and the director of the Center for Participatory Research at the University of New Mexico Bonnie Duran, DrPH, is an associate professor in the department of health services, University of Washington School of Public Health and is also Director of the Center for Indigenous Health Research at the Indigenous Wellness Research Institute John G. Oetzel, PhD,is a professor in the department of management communication in the Waikato Management School at the University of Waikato in Hamilton, New Zealand Meredith Minkler, DrPH, is professor Emerita of Health and Social Behavior in the School of Public Health, University of California, Berkeley

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