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Community-Based Participatory Research for Health
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The Editors xiii The Contributors xv Preface xxxiii Camara Phyllis Jones Acknowledgments xxxvii PART ONE: INTRODUCTION: HISTORY AND PRINCIPLES ONE: ON COMMUNITY-BASED PARTICIPATORY RESEARCH 3 Nina Wallerstein, Bonnie Duran, John G. Oetzel, and Meredith Minkler TWO: THEORETICAL, HISTORICAL, AND PRACTICE ROOTS OF CBPR 17 Nina Wallerstein and Bonnie Duran THREE: CRITICAL ISSUES IN DEVELOPING AND FOLLOWING CBPR PRINCIPLES 31 Barbara A. Israel, Amy J. Schulz, Edith A. Parker, Adam B. Becker, Alex J. Allen, III, J. Ricardo Guzman, and Richard Lichtenstein PART TWO: POWER, TRUST, AND DIALOGUE: WORKING WITH DIVERSE COMMUNITIES FOUR: UNDERSTANDING CONTEMPORARY RACISM, POWER, AND PRIVILEGE AND THEIR IMPACTS ON CBPR 47 Michael Muhammad, Catalina Garzon, Angela Reyes, and The West Oakland Environmental Indicators Project FIVE: TRUST DEVELOPMENT IN CBPR PARTNERSHIPS 61 Julie E. Lucero, Kathrine E. Wright, and Abigail Reese PART THREE: CBPR CONCEPTUAL MODEL: CONTEXT AND PROMISING RELATIONSHIP PRACTICES SIX: SOCIO-ECOLOGIC FRAMEWORK FOR CBPR: DEVELOPMENT AND TESTING OF A MODEL 77 Sarah L. Kastelic, Nina Wallerstein, Bonnie Duran, and John G. Oetzel SEVEN: YOUTH-LED PARTICIPATORY ACTION RESEARCH (YPAR): PRINCIPLES APPLIED TO THE US AND DIVERSE GLOBAL SETTINGS 95 Emily J. Ozer and Amber Akemi Piatt EIGHT:PARTNERSHIP, TRANSPARENCY, AND ACCOUNTABILITY: CHANGING SYSTEMS TO ENHANCE RACIAL EQUITY IN CANCER CARE AND OUTCOMES 107 Eugenia Eng, Jennifer Schaal, Stephanie Baker, Kristin Black, Samuel Cykert, Nora Jones, Alexandra Lightfoot, Linda Robertson, Cleo Samuel, Beth Smith, and Kari Thatcher NINE:SOUTH VALLEY PARTNERS FOR ENVIRONMENTAL JUSTICE: A STORY OF ALIGNMENT AND MISALIGNMENT 123 Magdalena Avila, Shannon Sanchez-Youngman, Michael Muhammad, Lauro Silva, and Paula Domingo de Garcia PART FOUR: PROMISING PRACTICES: INTERVENTION DEVELOPMENT AND RESEARCH DESIGN TEN: CBPR IN HEALTH CARE SETTINGS 141 Margarita Alegria, Chau Trinh-Shevrin, Bowen Chung, Andrea Ault, Alisa Lincoln, and Kenneth B. Wells ELEVEN: NATIONAL CENTER FOR DEAF HEALTH RESEARCH: CBPR WITH DEAF COMMUNITIES 157 Steven Barnett, Jessica Cuculick, Lori Dewindt, Kelly Matthews, and Erika Sutter TWELVE: CBPR IN ASIAN AMERICAN COMMUNITIES 175 Nadia Islam, Charlotte Yu-Ting Chang, Pam Tau Lee, and Chau Trinh-Shevrin THIRTEEN: ENGAGED FOR CHANGE: AN INNOVATIVE CBPR STRATEGY TO INTERVENTION DEVELOPMENT 189 Scott D. Rhodes, Lilli Mann, Florence M. Siman, Jorge Alonzo, Aaron T. Vissman, Jennifer Nall, and Amanda E. Tanner PART FIVE: PROMISING PRACTICES: ETHICAL ISSUES FOURTEEN:CBPR PRINCIPLES AND RESEARCH ETHICS IN INDIAN COUNTRY 207 Myra Parker FIFTEEN: DEMOCRATIZING ETHICAL OVERSIGHT OF RESEARCH THROUGH CBPR 215 Rachel Morello-Frosch, Phil Brown, and Julia Green Brody SIXTEEN: EVERYDAY CHALLENGES IN THE LIFE CYCLE OF CBPR: BROADENING OUR BANDWIDTH ON ETHICS 227 Sarah Flicker, Adrian Guta, and Robb Travers PART SIX: PROMISING PRACTICES TO OUTCOMES: CBPR CAPACITY AND HEALTH SEVENTEEN: EVALUATION OF CBPR PARTNERSHIPS AND OUTCOMES: LESSONS AND TOOLS FROM THE RESEARCH FOR IMPROVED HEALTH STUDY 237 John G. Oetzel, Bonnie Duran, Andrew Sussman, Cynthia Pearson, Maya Magarati, Dmitry Khodyakov, and Nina Wallerstein EIGHTEEN:PARTICIPATORY EVALUATION AS A PROCESS OF EMPOWERMENT: EXPERIENCES WITH COMMUNITY HEALTH WORKERS IN THE UNITED STATES AND LATIN AMERICA 251 Noelle Wiggins, Laura Chanchien Parajon, Chris M. Coombe, Aileen Alfonso Duldulao, Leticia Rodriguez Garcia, and Pei-Ru Wang NINETEEN: ACADEMIC POSITIONS FOR FACULTY OF COLOR: COMBINING LIFE CALLING, COMMUNITY SERVICE, AND RESEARCH 265 Lorenda Belone, Derek M. Griffith, and Barbara Baquero PART SEVEN: PROMISING PRACTICES TO OUTCOMES: HEALTHY PUBLIC POLICY TWENTY: COMMUNITY-BASED PARTICIPATORY RESEARCH FOR HEALTH EQUITY POLICY MAKING 277 Lisa Cacari-Stone, Meredith Minkler, Nicholas Freudenberg, and Makani N. Themba TWENTY ONE: IMPROVING FOOD SECURITY AND TOBACCO CONTROL THROUGH POLICY-FOCUSED CBPR: A CASE STUDY OF HEALTHY RETAIL IN SAN FRANCISCO 293 Meredith Minkler, Jennifer Falbe, Susana Hennessey Lavery, Jessica Estrada, and Ryan Thayer TWENTY TWO: CRIMINAL JUSTICE REFORM THROUGH PARTICIPATORY ACTION RESEARCH 305 Saneta deVuono-Powell, Meredith Minkler, Evan Bissell, Tamisha Walker, LaVern Vaughn, Eli Moore, and The Morris Justice Project TWENTY THREE: GLOBAL HEALTH POLICY: SLUM SETTLEMENT MAPPING IN NAIROBI AND RIO DE JANEIRO 321 Jason Corburn, Ives Rocha, Alexei Dunaway, and Jack Makau APPENDIX 1: CHALLENGING OURSELVES: CRITICAL SELF-REFLECTION ON POWER AND PRIVILEGE 337 Cheryl Hyde APPENDIX 2: GUIDING CBPR PRINCIPLES: FOSTERING EQUITABLE HEALTH CARE FOR LGBTQ+ PEOPLE 345 Miria Kano, Kelley P. Sawyer, and Cathleen E. Willging APPENDIX 3: QUALITY CRITERIA OF THE INTERNATIONAL COLLABORATION FOR PARTICIPATORY HEALTH RESEARCH (ICPHR) 351 Michael T. Wright APPENDIX 4: CULTURAL HUMILITY: REFLECTIONS AND RELEVANCE FOR CBPR 357 Vivian Chavez APPENDIX 5: FUNDING IN CBPR IN US GOVERNMENT AND PHILANTHROPY 363 Laura C. Leviton and Lawrence W. Green APPENDIX 6: REALIST EVALUATION AND REVIEW FOR COMMUNITY-BASED PARTICIPATORY RESEARCH: WHAT WORKS, FOR WHOM, UNDER WHAT CIRCUMSTANCES, AND HOW? 369 Justin Jagosh APPENDIX 7: PARTNERSHIP RIVER OF LIFE: CREATING A HISTORICAL TIME LINE 375 Shannon Sanchez-Youngman and Nina Wallerstein APPENDIX 8: PURPOSING A COMMUNITY-GROUNDED RESEARCH ETHICS TRAINING INITIATIVE 379 Cynthia Pearson and Victoria Sanchez APPENDIX 9: PARTNERSHIP AGREEMENTS: A PRACTICAL GUIDE TO DEVELOPING DATA SHARING, OWNERSHIP, AND PUBLISHING AGREEMENTS 385 Patricia Rodriguez Espinosa and Al Richmond APPENDIX 10: INSTRUMENTS AND MEASURES FOR EVALUATING COMMUNITY ENGAGEMENT AND PARTNERSHIPS 393 Nina Wallerstein APPENDIX 11: PARTICIPATORY MONITORING AND EVALUATION OF COMMUNITY HEALTH INITIATIVES USING THE COMMUNITY CHECK BOX EVALUATION SYSTEM 399 Stephen Fawcett, Jerry Schultz, Vicki Collie-Akers, Christina Holt, Jomella Watson-Thompson, and Vincent Francisco APPENDIX 12: POWER MAPPING: A USEFUL TOOL FOR UNDERSTANDING THE POLICY ENVIRONMENT AND ITS APPLICATION TO A LOCAL SODA TAX INITIATIVE 405 Jennifer Falbe, Meredith Minkler, Robin Dean, and Jana Cordeiero APPENDIX 13: CBPR INTERACTIVE ROLE-PLAYS: THREE SCENARIOS 411 Michele Polacsek and Gail Dana-Sacco AFTERWORD 417 Budd Hall and Rajesh Tandon INDEX 419

About the Author

Nina Wallerstein, DrPH, MPH, is a professor of public health in the College of Population Health and the Director of the Center for Participatory Research at the University of New Mexico. Bonnie Duran, DrPH, is a Professor in the School of Social Work at the University of Washington, and is also Director of the Center for Indigenous Health Research at the Indigenous Wellness Research Institute. John G. Oetzel, PhD, is a Professor in the Department of Management Communication in the Waikato Management School at the University of Waikato in Hamilton, New Zealand. Meredith Minkler, DrPH, is Professor Emerita of Health and Social Behavior in the School of Public Health, University of California, Berkeley.

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