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The Law and Ethics of Dementia


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Table of Contents

PART I: MEDICAL FUNDAMENTALS 1. What is Dementia? Elissa L Ash 2. The Demographics of Dementia Israel (Issi) Doron 3. The Genetics of Dementia Sophie Behrman, Klaus P Ebmeier and Charlotte L Allan 4. Can Dementia be Prevented? Amos D Korczyn and Veronika Vakhapova 5. Clinical Management of Dementia: An Overview (1) Noa Bregman and Orna Moore 6. Clinical Management of Dementia: An Overview (2) Chris Fox, Carolyn Chew-Graham, Emma Wolverson, Ian Maidment and Andrea Hilton 7. Best Interests Determination: A Medical Perspective Hugh Series 8. Advance Decisions and Proxy Decision-Making in the Elderly: A Medical Perspective Gary Sinoff and Natalia Blaja-Lisnic 9. The Happy Dementia Patient Hugh Series 10. Dementia: A Perspective from Primary Care Daniel Lasserson PART II: ETHICAL PERSPECTIVES 11. Dementia: An Ethical Overview Michael Dunn 12. Best Interests Determinations and Substituted Judgement: Personhood and Precedent Autonomy Andrew McGee 13. Proxy Decision-Making Jose Miola 14. Telling the Truth: The Ethics of Deception and White Lies in Dementia Care Maartje Schermer 15. Research on Patients with Dementia Adrian Treloar and Claudia Dunlop 16. Genetics and Dementia: Ethical Concerns Caroline J Huang, Michael Parker and Matthew L Baum 17. Common Perceptions of Dementia Perla Werner 18. Ethical Perspectives on End-of-Life Care: Euthanasia, Assisted Suicide and the Refusal of or Withdrawal of Life-Sustaining Treatments in those Living with Dementia Michael Gordon 19. Resource Allocation Issues in Dementia Leah Rand and Mark Sheehan 20. Sexuality in Dementia Julian C Hughes, Aileen Beatty and Jeanette Shippen 21. The Use of New Technologies in Managing Dementia Patients Julian C Hughes 22. Abuse, Safeguarding and Dementia Bridget Penhale PART III: LEGAL PERSPECTIVES 23. A Legal Overview Mary Donnelly 24. Assessing Capacity Lesley King and Hugh Series 25. Best Interests and Dementia Jonathan Herring 26. Proxy Decision-Making: A Legal Perspective Winsor C Schmidt 27. Being and Being Lost: Personal Identity and Dementia Jesse Wall 28. Dementia, Autonomy and Guardianship for the Old Margaret Isabel Hall 29. Restriction of Liberty Michael Schindler and Yael Waksman 30. Research on Patients with Dementia Phil Bielby 31. Dementia and Carers: Relationality and Informal Carers' Experiences Rosie Harding 32. End-of-Life Care Ofra G Golan 33. Health Care Resource Allocation Issues in Dementia Keith Syrett 34. The Use of New Technologies in the Management of Dementia Patients Karen Eltis PART IV: SOCIAL ASPECTS OF DEMENTIA 35. Discrimination Doug Surtees 36. Physical, Financial and other Abuse Ruijia Chen, E-Shien Chang, Melissa Simon and XinQi Dong 37. Driving and Dementia Desmond O'Neill 38. Voting and Political Participation Nina A Kohn PART V: PATIENT AND CARER PERSPECTIVES 39. This is My Life Peter JS Ashley 40. Dad's Dementia Andrew Billen 41. Lewy Body Disease: A Carer's Perspective Sue Berkeley and Rob Berkeley 42. Our Journey Shirley Nurock 43. The Power of Imagination Peter Richards 44. Dementia Care: Workpoints U Hla Htay

About the Author

Charles Foster is a Fellow of Green Templeton College, University of Oxford and a practising barrister. Jonathan Herring is Professor of Law at the University of Oxford. Israel Doron is Head of the Department of Gerontology, University of Haifa.


The Law and Ethics of Dementia is a very big book - in every sense of the word. It has sat on my bedside table for a few months, where I have eyed it guiltily - put off by its size and weighty subject matter. I wish I hadn't. I picked it up one Sunday morning a few weeks ago, intending to read one or two articles, and found I could not put it down. The chapters I read (and I have, by now, read most of them) were well written, and the perfect length to convey an idea well and clearly. The chapters are accessible enough for somebody who is new to this field to read and understand, whilst still exploring cutting edge questions that will interest people who are familiar with these issues. In short, this book is a real chocolate box of well written and interesting articles. Although most of the articles consider UK law, several chapters offer a more international perspective, and the ethical and medical chapters will be of interest to readers around the world. The book could be of interest for those with personal experiences of dementia, not merely philosophers and lawyers. As I was going through, I used up an entire packet of sticky index tabs to flag up passages that I wanted to return. I suspect this is a book I will be re-reading and thinking about for years to come. -- Lucy Series * The Small Places Blog, December 2014 *
The Law and Ethics of Dementia is the sort of academic book that you can read from start to finish, or whose chapters you can dip into individually ... its relevance will endure, and the great effort and energy that have evidently been expended by the editors and contributors will be repaid many times over. I could not recommend it more highly. -- Professor John Coggon, University of Bristol Law School * European Journal of Health Law *

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