Living with Lupus
Women and Chronic Illness in Ecuador (Louann Atkins Temple Women & Culture Series)
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|Format: ||Paperback, 204 pages|
|Published In: ||United States, 01 April 2014|
Once associated only with the wealthy and privileged in Latin America, lifelong illnesses are now emerging among a wider cross section of the population as an unfortunate consequence of growing urbanization and increased life expectancy. One of these diseases is the chronic autoimmune disorder lupus erythematosus. Difficult to diagnose and harder still to effectively manage, lupus challenges the very foundations of women's lives, their real and imagined futures, and their carefully constructed gendered identities. While the illness is validated by medical science, it is poorly understood by women, their families, and their communities, which creates multiple tensions as women attempt to make sense of an unpredictable, expensive, and culturally suspect medically managed illness. Living with Lupus vividly chronicles the struggles of Ecuadorian women as they come to terms with the experience of debilitating chronic illness. Drawing on years of ethnographic research, Ann Miles sensitively portrays the experiences and stories of Ecuadorian women who suffer with the intractable and stigmatizing disease. She uses in-depth case histories, rich in ethnographic detail, to explore not only how chronic illness can tear at the seams of women's precarious lives, but also how meanings are reconfigured when a biomedical illness category moves across a cultural landscape. One of the few books that deals with the meanings and experiences of chronic illness in the developing world, Living with Lupus contributes to our understanding of a significant global health transition.
Table of Contents
AcknowledgmentsChapter One. IntroductionChapter Two. Cuenca, Lupus, and Chronic IllnessChapter Three. Health Care in EcuadorChapter Four. LiminalityChapter Five. LossChapter Six. SufferingChapter Seven. TransformationChapter Eight. Living with LupusNotesReferencesIndex
About the Author
ANN MILES is Associate Professor of Anthropology and Women's Studies at Western Michigan University in Kalamazoo.
University of Texas Press|
22.91 x 15.19 x 1.19 centimetres (0.31 kg)|
15+ years |