A Guide for Families
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|Format: ||Paperback / softback, 293 pages, 3rd Edition|
|Published In: ||United States, 01 November 2006|
Because most people who are diagnosed with MS are between the ages of 15-55, the disease has a significant impact, not only on the individual with the disease, but also on their family members and loved ones. This brand-new third edition of "Multiple Sclerosis: A Guide for Families" continues to help families to strengthen their coping skills in dealing with the emotional aspect of this disease. Families experiencing multiple sclerosis often find themselves in uncharted territory. Prior patterns of interacting with each other may no longer work; roles often shift with dramatic emotional impact; guilt, anger, sadness, and a sense of burden may create a barrier to intimacy, joy, growth, and family unity. This book helps families navigate through the challenges created by MS, from the time of diagnosis onward. The topics have been selected to give families a roadmap - helping them to understand the potential impact of MS on daily life, strengthen their coping strategies, and plan more effectively for the uncertain tomorrow. Its goal is to enable families to move toward a restoration of balance, humor, productivity, and family solidarity. In line with this goal, the book provides a comprehensive list of readings and resources. The authors include specialists from the fields of neurology, general medicine, obstetrics and gynecology, psychology, social work, and law, as well as people with MS. Together they provide information and guidance in those areas of daily life of greatest concern for families living with MS - adapting to the disease, developing a relationship with one's physician, sexuality, pregnancy, parenting, cognitive and emotional challenges, caregiving, and long-term planning. This multidisciplinary group reflects the comprehensive care and teamwork that have become the model for effective MS care. The special features and updates include: chapters, which have been updated; recommended resources and reading sections have been fully updated; and two new chapters cover Planning for Possible Care Needs, and Parenting A Child or Teen with MS.
Table of Contents
Foreword by Nancy Holland; When MS Joins the Family; Emotional and Cognitive Issues; The Family's Relationship with the Physician and the Healthcare Team; Sexuality and Intimacy; Fertility, Pregnancy, and Childbirth; Parenting with MS; Parenting a Child or Teenager with MS; Adults with MS and Their Parents; The Care-giving Relationship; Planning Wisely for Possible Care Needs; General Health and Well-Being; Life Planning: Financial and Legal Considerations; Supportive Educational Resources for the Family; Appendix A: Additional Readings; Appendix B: Recommended Resources; Appendix C: Professional Biographies of the Authors; Index.
About the Author
Dr. Rosalind Kalb, a clinical psychologist, is Director of the Professional Resource Center at the National Multiple Sclerosis Society in New York, where she develops and provides educational and consultation services to clinicians who care for people with MS. In her private clinical practice, she specializes in the needs of individuals and families living with chronic illness and disability. She serves on the editorial board of several publications, including the International Journal of MS Care.
...exceptionally reader-friendly...a good resource for professionals as well as lay readers...Each chapter provides excellent additional readings, and there is an appendix of recommended resources. I highly recommend this invaluable guide. -- Inside MS"...This practical, complete, and highly readable guide is must reading for anyone confronting this debilitating illness personally or in a loved one." -- The Bookwatch"...a complete, highly readable guide that addresses all of the issues multiple sclerosis brings to the family...essential, critically important reading for anyone with MS, their families and their friends." -- The Midwest Book Review"...will help MS sufferers and their loved ones prepare for the impact of MS, keep the lines of communication open, devise coping strategies, and give MS no more space in the household than it needs."-- PA Today
Demos Medical Publishing|
22.91 x 15.6 x 1.93 centimetres (0.50 kg)|
15+ years |