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Pediatric Life Care Planning and Case Management


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Table of Contents

Normal Growth and Development of Children
Normal Growth and Development; Pasquale J. Accardo
Cognitive and Psychosocial Development of Children; Carol Walker

The Roles of the Life Care Plan Team
The Role of the Pediatric Care Manager in Life Care Planning; Nancy J. Bond and Lynne P. Trautwein
The Role of the Life Care Planner in Pediatric Life Care Planning; Susan Riddick-Grisham
The Role of the Pediatric Physiatrist in Life Care Planning; Charles R. Law and Dennis J. Matthews
The Role of the Pediatric Neuropsychologist in Life Care Planning; Jeffrey S. Kreutzer, Emilie E. Godwin, Nancy H. Hsu, and Laura A. Taylor
The Role of the Pediatric Neurologist in Life Care Planning; Georgann Ferrone and Phillip L. Pearl
The Role of the Child Clinical Psychologist in Life Care Planning; Ann V. Deaton and Josie Castaldi
The Role of the Developmental Pediatrician in Life Care Planning; Pasquale J. Accardo and Jennifer Accardo
The Role of the Occupational Therapist in Life Care Planning; Jill Poth Lack
The Role of the Physical Therapist in Life Care Planning; Gina Ricardo Cowan and Julie Good
The Role of the Speech-Language Pathologist in Life Care Planning; Carolyn Wiles (Watkins) Higdon and Laura (Lollie) Vaughan
The Role of the Vocational Rehabilitation Consultant in Life Care Planning; Ann T. Neulicht and Debra E. Berens
The Role of the Special Needs Trust Administrator in Life Care Planning; Amy McCormick and Allison J. Bren

Chronic Conditions and Disability States
Life Care Planning for the Child with a Spinal Cord Injury; Terry Winkler and Laura M. Deming
Life Care Planning for Children with Neurodevelopmental Disabilities; Jacob A. Neufeld, Eugenio Monasterio, Laura A. Taylor, Susan Riddick-Grisham, and Lee A. Livingston
Life Care Planning for the Child with Asthma and Other Chronic Respiratory Conditions; Susan G. Engleman
Life Care Planning for the Child with Acquired Brain Injury; Sherilyn W. Driscoll, Virmarie Quinones-Pagan, Ronald C. Savage, and Susan Riddick-Grisham
Life Care Planning for Children with Diabetes; Amy M. Sutton
Life Care Planning for the Child with a Brachial Plexus Injury; Scott H. Kozin and Mona Goldman Yudkoff
Life Care Planning for the Pediatric Burn Patient; Ruth Rimmer and Daniel Martin Caruso
Life Care Planning for Children and Adolescents with Mental Health Disorders; Conni J. Wells and James C. Taylor
Life Care Planning for the Child with an Amputation; Robert H. Meier III
Life Care Planning for Pediatric Solid Organ Transplantation; Dan M. Bagwell and Jennifer Milton
Life Care Planning for Children with Genetic Disorders; G. Bradley Schaefer and Bruce A. Buehler
Life Care Planning for the Visually Impaired Child; Stacey R. Helvin and Amy M. Sutton
Life Care Planning for Children with Hearing Impairments; Carolyn Wiles (Watkins) Higdon and William D. Mustain
Bilirubin Encephalopathy/Kernicterus Implications for Life Care Planning; Steven M. Shapiro, Laura M. Deming, Susan Riddick-Grisham and Ruth Klionski Shapiro
Life Care Planning for the Child with an Artificial Airway or Requiring Long-Term Mechanical Ventilatory Assistance; Susan G. Engleman and Laura M. Deming

Forensic Considerations
Use of the Life Care Plan in a Lawsuit Involving a Child; Bruce H. Stern
Life Care Plans from a Legal Defense Perspective; Gary W. Brown and Adam W. Smith
Use of the Life Care Planning Expert in Legal Cases; Connie Sunday and Terry Kennedy Arnold
Establishing Foundations for Life Care Plan Development; Paul M. Deutsch
Life Expectancy; Jamie L. Pomeranz, Nami S. Yu, and Linda R. Shaw

Special Issues
Special Education Law and the Pediatric Patient; Sharon S. England
Essential Concepts in Pediatric Assistive Technology; Thomas Wayne King, Adam Gideon King, and Debra Raye King
The Role of the Medical Home in Life Care Planning; Shih-Ning Liaw
Considerations for Medical Equipment in a Pediatric Life Care Plan; Paul Amsterdam
Ethical and Moral Issues in Caring for Children with Special Needs; Teresa A. Savage
Understanding Medicaid and Other Funding Sources; Mary Anne Ehlert and Donald G. Olsen
Continuing Life with Noah: A Mother's Perspective; Susan J. Redmon


About the Author

Susan Riddick-Grisham, RN, BA, CCM, CLCP, has a private case management and life care planning practice and is the founder of the Care Planner Network, a nonprofit organization. In 2006, she received the Lifetime Achievement Award from the sponsors of the annual International Life Care Planning Symposium. Laura M. Deming, MS, RN, PNP-BC, CCM, CLCP, is a practicing pediatric nurse practitioner with a consulting business that includes life care planning services. She received the Case Management Society of America's Award of Service Excellence in 2004. Laura is also the mother of a pre-school child with special needs.

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