1. Introduction to Personalised Medicine, Individual Choice and the Common Good Donna Dickenson, Britta van Beers and Sigrid Sterckx; 2. Personalised medicine and the politics of human nuclear genome transfer Françoise Baylis and Alana Cattapan; 3. Stem cell derived gametes and uterus transplants: hurray for the end of third party reproduction! Or not? Heidi Mertes; 4. Personalising future health risk through 'biological insurance': proliferation of private umbilical cord blood banking in India Jyotsna Gupta; 5. Combating the trade in organs: why we should preserve the communal nature of organ transplantation Kristof Van Assche; 6. When there is no cure: challenges for collective approaches to Alzheimer's disease Robin Pierce; 7. Lost and found: relocating the individual in the age of intensified data sourcing in European healthcare Klaus Hoeyer; 8. Presuming the promotion of the common good by large-scale health research: the cases of care.data 2.0 and the 100,000 Genomes Project in the UK Sigrid Sterckx, Sandi Dheensa and Julian Cockbain; 9. My genome, my right Stuart Hogarth, Julian Cockbain and Sigrid Sterckx; 10. 'The best me I can possibly be': legal subjectivity, self-authorship and wrongful life actions in an age of 'genomic torts' Britta van Beers; 11. I run, you run, we run: a philosophical approach to health and fitness apps Marli Huijer and Christian Detweiler; 12. The molecularised me: psychoanalysing personalised medicine and self-tracking Hub Zwart.
Asks whether personalised medicine is superior to 'one-size-fits-all' treatment. Does it elevate individual choice above the common good?
Britta van Beers is Associate Professor at Vrije Universiteit, Amsterdam. As a legal philosopher she explores the notions of personhood and corporality within the regulation of biomedical technologies, such as assisted reproductive technologies, markets in human body materials and biomedical tourism. In 2011 she received the Praemium Erasmianum Research Prize for her Ph.D. dissertation on the legal relationship between persons and their bodies in the era of medical biotechnology (2009). Recent publications include the co-edited volumes Humanity in International Law and Biolaw (Cambridge, 2014) and Symbolic Legislation and Developments in Biolaw (2016). Sigrid Sterckx is a founding member of the Bioethics Institute, Ghent. Her current research projects focus on ethical and legal aspects of: human tissue research and biobanking; patenting in biomedicine and genomics; organ transplantation; medical end-of-life practices; neuroethics; and global justice. She has published more than 150 articles, book chapters and books on these issues, including the co-authored book Exclusions from Patentability (Cambridge, 2012) and the co-edited volume Continuous Sedation at the End of Life: Ethical, Clinical and Legal Perspectives (Cambridge, 2013). Sigrid also serves on various advisory committees, including the Ethics Committee of the Universiteit Gent Hospital. Donna Dickenson is the author of one of the earliest books taking a balanced critical stance on personalised medicine, Me Medicine vs. We Medicine: Reclaiming Biotechnology for the Common Good (2013). She is Emeritus Professor of Medical Ethics and Humanities at Birkbeck College, University of London and Research Associate at the HeLEX Centre at the University of Oxford. Previously she taught at Imperial College School of Medicine, London. For many years she served on the Ethics Committee of the UK Royal College of Obstetricians and Gynaecologists. She has written or edited twenty-five books, as well as over one hundred articles or chapters. In 2006 she became the first woman to win the international Spinoza Lens Award for her contribution to public debate on current ethical issues about the impact of biotechnology on our society.
'This volume illuminates the fundamental tension between the
individualistic promises of personalized medicine and the demands
of social justice. Moreover, it follows this moral fault-line well
beyond the territory of applied human genomics, to show how it runs
through biomedical practices ranging from infertility treatments,
umbilical cord blood banking, and organ transplantion, all the way
to how we care for people with Alzheimer Disease and use personal
fitness apps to care for ourselves. In the process the volume
nicely illustrates why applied genomics cannot expect to outrun
this tension by reinventing itself as a 'precision' approach to
resolving public health inequities. By demonstrating the ubiquity
of the 'me/we' tension in the ways our society thinks about and
pursues health, the book challenges the reader to consider
personalized medicine and 'precision healthcare' as exemplars of
rather than alternatives to modern biomedicine's conventional set
of ethical commitments.' Eric Thomas Juengst, University of North
Carolina School of Medicine
'This important book Personalised Medicine, Individual Choice and
the Common Good intervenes in one of the most important debates of
our time - and that is access to health care. This is a global
matter and it touches virtually every area of human need and desire
from organ transplantation to assisted reproduction. This book
confronts both our desires and demands and explores the costs of
giving the people what they want.' Michele Goodwin, University of
California
'This rich collection of essays is a tribute to the generative
powers and explanatory scope that co-editor Donna Dickenson's 'Me
Medicine versus We Medicine' framework provides. The volume's
authors and editors offer trenchant insights into the social,
cultural, and market dynamics that underlie the hypertrophy of
practices and products shaped by 'Me Medicine', piercing inflated
promises and carefully mapping the repercussions for individual
patients and for our commitments to public health. Not least, they
also chart a hopeful course for future efforts to better balance
individual choice and the common good.' Marcy Darnovsky, Center for
Genetics and Society
'The contributors to this volume largely offer a counter-narrative
to the hype [about personalized medicine]. Assessing personalized
medicine from legal, public health, human rights, feminist,
technological, ethical, economic, political, and philosophical
perspectives, the authors unpack its benefits and potential harms.
In doing so, most of them deploy to good effect an incisive
heuristic advanced several years ago by Donna Dickenson that
divides health research and care into two approaches dubbed 'We
Medicine' and 'Me Medicine.'' Gina Maranto, Biopolitical Times
'The multidisciplinary perspectives offered in this book will make
it of interest to a variety of audiences, especially bioethics,
law, and philosophy students and academics. It will also be of
interest to other scholars studying the intersection of medicine,
society, and politics, such as political scientists and
communications experts.' Maya Sabatello, Hastings Center Report
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