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Research Ethics

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Table of Contents

VOLUME ONE: HISTORICAL CONTEXT Medical Ethics: Principles, Persons, and Perspectives: From Controversy to Conversation - K. Boyd Human Experimentation in Historical and Ethical Perspectives - Norman Howard-Jones Ethics and Clinical Research - Henry Beecher Exploitation and Enrichment: The Paradox of Medical Experimentation - M. Brazier Ethical Aspects of Experimentation with Human Subjects - Henry Beecher Human Experimentation: Historical Perspective of Breaches of Ethics in US Health Care - Elizabeth Layman Protection of Human Subjects of Research: Recent Developments and Future Prospects for the Social Sciences - Eleanor Singer and Felice Levine Learning from Tuskegee: From Moral Outrage to Integrative Ethics - Ann Gallagher The Nuremberg Code The Belmont Report - The National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research Universal Declaration on Bioethics and Human Rights - UNESCO WMA International Code of Medical Ethics - World Medical Association WMA Declaration of Helsinki - Ethical Principles for Medical Research Involving Human Subjects - World Medical Association Ethics and Standards in Medicine - Much More Than Abortion and Euthanasia - Bryan Vernon Laying Ethical Foundations for Clinical Research - Jon Harkness, Susan Lederer and Daniel Wikler On Ethical Principles for Social Research - Martyn Hammersley Between the Accountable and the Auditable: Ethics and Ethical Governance in the Social Sciences - Nathan Emmerich Creeping Ethical Regulation and the Strangling of Research - Martyn Hammersley The Ethical Case against Ethical Regulation in Humanities and Social Science Research - Robert Dingwall Adjudicating Entitlements: The Emerging Discourses of Research Ethics Boards - Elvi Whittaker IRB Reformation: Is Unfettered Access the Answer? - Kristine Florczak and Nancy Lockie Protecting Vulnerable Research Participants: A Foucault-Inspired Analysis of Ethics Committees - Truls Juritzen, Harald Grimen and Kristin Heggen An Alternative Ethics? Justice and Care as Guiding Principles for Qualitative Research - Martyn Hammersley and Anna Traianou VOLUME TWO: CLASSIC CASES REDUX A Historical Interpretation of Deceptive Experiments in American Psychology - C. Herrera Behavioral Study of Obedience - Stanley Milgram Some Thoughts on Ethics of Research: After Reading Milgram's "Behavioral Study of Obedience" - Diana Baumrind Issues in the Study of Obedience: A Reply to Baumrind - Stanley Milgram On the Ethics of Intervention in Human Psychological Research: With Special Reference to the Stanford Prison Experiment - Philip Zimbardo Controversial Psychological Research Methods and Their Influence on the Development of Formal Ethical Guidelines - Katie Youngpeter "Torture at Yale": Experimental Subjects, Laboratory Torment and the "Rehabilitation" of Milgram's "Obedience to Authority" - Ian Nicholson What Can Milgram and Zimbardo Teach Ethics Committees and Qualitative Researchers about Minimizing Harm? - Martin Tolich Ethical Issues and Guidelines for Conducting Data Analysis in Psychological Research - Rachel Wasserman On Being Sane in Insane Places - D. Rosenhan Laud Humphreys and Research Ethics - Earl Babbie Controversies Surrounding Laud Humphreys' Tearoom Trade: An Unsettling Example of Politics and Power in Methodological Critiques - Michael Lenza Whose Side Are We On? - Howard Becker Protecting Research Subjects and Unintended Consequences: The Effect of Guarantees of Confidentiality - F.G. Reamer The Myth of Informed Consent: In Daily Practice and in Clinical Trials - William Silverman The Ethics of Open Methods - Roger Homan Subject, Project or Self - Thoughts in Ethical Dilemmas for Social and Medical Researchers - Jane Batchelor and Catherine Briggs The Ethics of Ethnography - Elizabeth Murphy and Robert Dingwall Researching Researchers: Lessons for Research Ethics - Rose Wiles, Vikki Charles, Graham Crow and Sue Heath VOLUME THREE: CORE CONCEPTS Ethics and the Practice of Qualitative Research - Ian Shaw Empty Ethics: The Problem with Informed Consent - Oonagh Corrigan Informed Consent in International Research - Patricia Marshall Exploring the Meaning of Consent: Participation in Research and Beliefs about Risks and Benefits - Eleanor Singer What Do Prospective Research Participants Want to Know? What Do They Assume They Know Already? - James Walkup and Elinor Bock Ethics at Home: Informed Consent in Your Own Backyard - Susan Malone Improving Consent with Minority Participant from Researcher and Community Surveys - Sandra Crouse Quinn et al. Research Ethics and Data Quality: The Implications of Informed Consent - Graham Crow, Rose Wiles, Sue Heath and Vikki Charles Informed Consent, Gatekeepers and Go-Betweens: Negotiating Consent in Child- and Youth-Centred Institutions - Sue Heath, Vikki Charles, Graham Crow and Rose Wiles An Experiment with a Confidentiality Reminder in a Telephone Survey - J. Frey Confidentiality for Whom? - Ian Robinson Confidentiality and Autonomy: The Challenge(s) of Offering Research Participants a Choice of Disclosing Their Identity - James Giordano et al. Against Confidentiality? Privacy, Safety and the Public Good in Professional Communications - Chris Clark Talking about Suicide: Confidentiality and Anonymity in Qualitative Research - Susanne Gibson, Outi Benson and Sarah Brand Dilemmas in Doing Insider Research in Professional Education - Caroline Humphrey Whose Data Are They Anyway? Practical, Legal and Ethical Issues in Archiving Qualitative Research Data - Odette Parry and Natasha Mauthner Some Ethical and Methodological Issues in Research with People with Learning Difficulties - Kirsten Stalker Research with Children: The Same or Different from Research with Adults? - Samantha Punch The Ethical and Methodological Complexities of Doing Research with `Vulnerable' Young People - Gill Valentine, Ruth Butler and Tracey Skelton The Ethical Maze: Finding an Inclusive Path towards Gaining Children's Agreement to Research Participation - Alison Cocks Old Methods and New Technologies: Social Media and Shifts in Power in Qualitative Research - Jennifer Reich Anonymisation and Visual Images: Issues of Respect, `Voice' and `Protection' - Rose Wiles et al. VOLUME FOUR: POWER, POLITICS AND REFLEXIVITY Ethical Problems in Studying a Politically Sensitive and Deviant Community - Lee Rainwater and David J. Pittman Guilty Knowledge, Dirty Hands, and Other Ethical Dilemmas: The Hazards of Contract Research - David Fetterman Sensitivity as a Problem in Field Research: A Study of Routine Policing in Northern Ireland - John D. Brewer On Being Partisan in Non-Partisan Settings: Field Research and the Politically Committed - S. Grills Blowing the Whistle on Police Violence: Gender, Ethnography and Ethics - Louise Westmarland Ethical and Political Issues in Contemporary Research Relationships - Rachel Aldred Research Ethics in Victimization Studies: Widening the Lens - James J. Clark and Robert Walker Researching Sensitive and Emotive Topics: The Participants' Voice - Jacqueline L. Crowther and Mari Lloyd-Williams Picture This . . . Safety, Dignity, and Voice-Ethical Research with Children: Practical Considerations for the Reflexive Researcher - Shanon K. Phelan and Elizabeth Anne Kinsella Researching Others: Epistemology, Experience, Standpoints, and Participation - Barbara Fawcett and Jeff Hearn `Living' Ethical Dilemmas for Researchers When Researching with Children - Luigina Mortari and Deborah Harcourt Dissonant Alignments: The Ethics and Politics of Researching State Institutions - Anne Lavanchy What Is Right? Ethics in Intellectual Disabilities Research - Katherine McDonald and Colleen A. Kidney Balancing Ethics and Quality in Educational Research - The Ethical Matrix Method - Reidun Tangen Exploring Participant-centred Reflexivity in the Research Interview - Kathleen Riach The Researcher as Hooligan: Where `Participant' Observation Means Breaking the Law - Geoff Pearson The Ethical and Methodological Challenges of Social Work Research with Participants Who Fear Retribution: To `Do No Harm' - Gabrielle Drake Ethics in Educational Research: Introducing a Methodological Tool for Effective Ethical Analysis - Kris Stutchbury and Alison Fox Everyday Ethics in Community-based Participatory Research - Sarah Banks et al. Children and School-based Research: `Informed Consent' or `Educated Consent'? - Miriam David, Rosalind Edwards and Pam Alldred `Going Deep' and `Giving Back': Strategies for Exceeding Ethical Expectations When Researching amongst Vulnerable Youth - Sharlene Swartz VOLUME FIVE: COVERT RESEARCH The Ethics of Covert Methods - Roger Homan Comment on `The Ethics of Covert Methods' - Martin Bulmer Covert Participant Observation: On Its Nature and Practice - Richard A. Hilbert The Research Ethics of Pseudo-Patient Studies - A New Look at the Merits of Covert Ethnographic Methods - Martin Bulmer Dirty Data and Investigative Methods - David Shulman Covert Participant Observation: Reconsidering the Least Used Method - Mitch Miller A Clash of Methodology and Ethics in `Undercover' Social Science - C.D. Herrera Covert Participant Observation of a Deviant Community: Justifying the Use of Deception - Matthew A. Lauder Parts Unknown: Undercover Ethnography of the Organs-Trafficking Underworld - Nancy Scheper-Hughes Is There a Place for Covert Research Methods in Criminology? - Helen M. Wells Seeking Informed Consent: Reflections on Research Practice - Chih Hoong Sin Between Overt and Covert Research: Concealment and Disclosure in an Ethnographic Study of Commercial Hospitality - Peter Lugosi Research Ethics in the UK: What Can Sociology Learn from Health? - Sue Richardson and Miriam McMullan Inside the "Pro-ana" Community: A Covert Online Participant Observation - Sarah R. Brotsky and David Giles The Art and Politics of Covert Research: Doing `Situated Ethics' in the Field - David Calvey Ethical Covert Research - Paul Spicker Much Ado about Deception: Consequences of Deceiving Research Participants in the Social Sciences - Davide Barrera and Brent Simpson VOLUME SIX: CONTEMPORARY ISSUES AND CHALLENGES A Review of Research Ethics in Internet-based Research - Ian Convery and Diane Cox Intermezzo Ethics and Information: An Encyclopedic Overview - Robert Hauptman Protecting Human Subjects in Internet Research - Larry A. Pace and Mary Livingston Ethical Dilemmas in Research on Internet Communities - Sarah Flicker, Dave Haans and Harvey Skinner The Ethics of Internet Research - Rebecca Enyon, Jenny Fry and Ralph Schroeder Digital Ethnography: An Examination of the Use of New Technologies for Social Research - Dhiraj Murthy Ethnographic Approaches to the Internet and Computer-Mediated Communication - Angela Cora Garcia, Alecea Standlee, Jennifer Bechkoff and Yan Cui Exploring Ethical and Methodological Issues in Internet-based Research with Adolescents - Heather T. Battles Private Conversations and Public Audiences: Exploring the Ethical Implications of Using Mobile Telephones to Research Young People's Lives - Denise Hinton Talking Sexuality Online - Technical, Methodological and Ethical Considerations of Online Research with Sexual Minority Youth - Paul Willis Ethics and Social Media - Constance Milton Personal Internet Archives and Ethics - Stine Lomborg Internet-Mediated Technologies and Mixed Methods Research: Problems and Prospects - Sharlene Hesse-Biber and Amy Griffin Taking and Using: Ethical Issues of Photographs for Research Purposes - Luc Pauwels Ethical Issues in Image-based Research - Andrew Clark, Jon Prosser and Rose Wiles Just Images: Aesthetics, Ethics and Visual Criminology - Eamonn Carrabine Is It the End for Anonymity As We Know It? A Critical Examination of the Ethical Principle of Anonymity in the Context of 21st Century Demands on the Qualitative Researcher - Liz Tilley and Kate Woodthorpe `Caught in the Act': Ethics Committee Review and Researching the Sexual Culture of Schools - Louisa Allen The Betrayal of Research Confidentiality in British Sociology - John Lowman and Ted Palys Ethical Use of Social Media to Facilitate Qualitative Research - Belinda Lunnay et al. Big Data Ethics - Andrej Zwitter

About the Author

Professor Julie Scott Jones is the Head of the Department of Sociology at Manchester Metropolitan University and the Director of the MMU Q-Step Centre, which received GBP1.15 million in funding from the Nuffield Foundation-ESRC-HEFCE. She joined Manchester Metropolitan University in 2003 and since 2018 has been the Head of department. Julie is the author of `Being the Chosen; exploring a Christian Fundamentalist Worldview' (2010) and co-author of `Ethnography in Social Science Practice' (2010). More recently, she has co-authored a number of journal articles on the pedagogy of quantitative methods teaching, based on her current research based in this field. She is currently teaches on both undergraduate and postgraduate research methods modules, with a particular interest in ethics and quantitative data analysis.

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