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Foreword by Dr Rowan Williams. Acknowledgements. Introduction. 1. Hope Beyond Recovery. 2. Evocative Presence. 3. Accompanying Presence. 4. Comforting Presence. 5. Hopeful Presence. 6. Rethinking Spiritual Care as Presence. Towards a Theory of 'Chaplain as Hopeful Presence'. 8. By Way of an Ending: A Personal View. Appendix: The Research Project. References. Index.
Creative reflection on the work chaplains do with people who are dying and the unique quality of the relationship that palliative care professionals construct with patients at the end of life
Steve Nolan, Ph.D., is a palliative care chaplain at Princess Alice Hospice, Surrey, UK, where he works daily with people who are dying, supporting them and their families. He regularly teaches spiritual care to students visiting the hospice and is a tutor on the MTh in Chaplaincy Studies at St. Michael's College, Llandaff, part of Cardiff University.
This is an extraordinary book. Steve Nolan invites his readers to enter into those intimate moments between the health care professional and the person who is dying in which hopes and fears are held together in sometimes painful but beautiful experiences of spiritual integrity. The book draws on material from interviews with hospice chaplains, but its insights into spiritual care have much to offer any worker in palliative care services. Using the concept of 'dwelling', Nolan explores the idea of the worker as 'presence' - a dynamic interaction between two people in proximity to death in which my death and death of another become fused. We often talk about empathy in this field, but Steve Nolan has explored empathy with the person who is dying in all its demanding, challenging and privileging richness. -- Professor Margaret Holloway, Professor of Social Work and Director of the Centre for Spirituality Studies, University of Hull Accessible, engaging and informative - a compelling read, striking at the heart of what is important to those who are dying. Complex and sensitive issues explored with honesty, sensitivity and integrity. This book as the potential to transform how matters of death, dying and spirituality are addressed by all those providing end of life care. -- Wilf McSherry, Professor of Dignity in Care for Older People, Staffordshire University and The Shrewsbury and Telford Hospital NHS Trust Steve Nolan clears away the clutter and gets to the very heart of spiritual care. He explores the human capacity to 'stare into the sun' of one's own mortality, and invites an authentic engagement with the dying, which offers hope beyond recovery. This book, which is all about 'being-with' the other, in the depths, shifts perceptions of hopeful journeying and spiritual care and is an essential read for all who care for the dying soul. -- Ian Stirling, Editor, Scottish Journal of Healthcare Chaplaincy and Association of Hospice and Palliative Care Chaplains This book is written by someone who knows only too well the distress and turmoil of those adapting to the knowledge that their life is short. He also knows how people fluctuate in their acceptance of death approaching and yet wish to live. Cicely Saunders said that ' dignity is having a sense of personal worth'. Connecting with people is fundamental to restoring the sense of a person's worth, understanding them in the unique biographical context of their life. Some turn to religious faith, some turn away. But all need to know their uniqueness is respected and need to be listened to. Hope then emerges again; realistic hope for what can be achieved and acceptance of what cannot, hope to complete life's tasks well, hope to do whatever the individual needs in the time left. And hope is confirmed in the secure knowledge that they will not be abandoned. The author's experience of 'being there', advocating for patients and giving voice to those who feel they are becoming voiceless underpin his writings. His remit concerns spirituality and personhood far more than any particular religious faith. His work is truly uplifting as it restores the essence of being. -- Baroness Ilora Finlay, Professor of Palliative Medicine and Independent Crossbench member of the House of Lords Steve Nolan's book, written from his experience of caring for the staff and patients of Princess Alice Hospice, Surrey, is a first-class attempt to show how contemporary clinical pastoral care embraces both spiritual and scientific values... The value of the book for most people who try to accompany those who are dying will be Nolan's painstaking descriptions of what we can and cannot do, in the quest to bring hope and love instead of fear and isolation. -- The Sign The most rewarding elements are the case-studies, which analyse with great sensitivity the relationship of chaplain and patient, and contain important lessons for anyone working in similar situations. Thoroughly recommended. -- Quarterly Magazine of Christian Council on Ageing This is a book I shall recommend to students of spiritual care, nurses and chaplains, It is a valuable addition to the slowly growing canon of key texts for the understanding and development of chaplaincy. -- The Journal of Health Care Chaplaincy Perhaps the most important insight in this brilliant text is enabling readers to think about owning the anxiety of our own death. The Foreword by Dr Rowan Williams, the current Archbishop of Canterbury, provides a notable endorsement of Nolan's volume. All those who work in palliative or terminal care will find this book an invaluable asset and it could profitably be included in reading lists for nurses, social workers and medical students. If managers in NHS Trusts are questioning the funding of chaplains, this is the book to show them, emphasizing that our duty of care demands that dying people must not be forgotten. It could be you or me tomorrow or even today. -- The International Journal of Person Centered Medicine A strong religious belief is not necessary to gain something from this book. It should be in every library and on the shelves of anyone who wishes to understand how they can support those in their care. -- Nursing Older People