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Thriving with Neurofibromatosis

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Home » Books » Science » Medicine » Genetics

Thriving with Neurofibromatosis

By Kristi Hopkins

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Format: Paperback, 129 pages
Published In: United States, 01 December 2010
1 in 3000 people are born with Neurofibromatosis. It affects all of us in different ways. For some, Neurofibromatosis is as clear as the tumors on their face. For others, it hides beneath the surface, creating tumors that destroy hearing, vision, and more. Many of us are misdiagnosed, misunderstood, and often simply missed by a world of medicine that doesn't have a full grasp on all teh effects of NF. Stereotyped, ignored, or shunned by a world who thinks we either have the Elephant Man's disease, common migraines, or a few too many moles and birthmarks. In a society that values beauty so highly, NF'ers often choose to hide from others, and end up hiding from themselves. In 2007, Kristi chose to stop hiding, and start Thriving, as NF became a bigger part of my life than ever before, taking a firm grip on the health of three of my six children. Most people with NF, or any of a thousand other genetic disorders, focus on surviving from day to day. My kids deserve more than just to survive. And so do YOU. Thriving with Neurofibromatosis. We ALL have a story, this is mine.

About the Author

Kristi Hopkins is a mother to six wonderful children, three of which share her genetic disorder of Neurofibromatosis. Her many talents include cartooning, scrapbooking, cake decorating, making diaper cakes, writing, and maintaining her sanity. After spending the majority of her youth in Southern California, Kristi now resides in Broomfield, CO. When she's not managing the household, she's actively working to let the world know more about Neurofibromatosis. Kristi's blog, http: // has been the cornerstone of her passion for evangelizing on behalf of NFer's around the world since she started it in 2009. Kristi welcomes the opportunity to speak to your group about Thriving with Neurofibromatosis. Contact her at for details on how to book her at your next event.

EAN: 9781456358693
ISBN: 1456358693
Publisher: Createspace Independent Publishing Platform
Dimensions: 22.91 x 15.19 x 0.71 centimetres (0.18 kg)
Age Range: 15+ years
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