Table of Contents

Acknowledgments
The Unexpected Journey Begins
Chapter . Navigating Your Feelings
Chapter 2. Staying Healthy on the Journey
Chapter 3. Getting What You Need on the Road to the New Normal
Chapter 4. Communicating With Your Child: It's a Two-Way Street
Chapter 5. Your Co-Pilots: Other Parents and Parent Figures in Your Child amp rsquo s Life
Chapter . Getting Everyone on Board: Siblings and Other Family Members
Chapter 7. Mechanics of Working With the Medical Team
Chapter 8: Mechanics of Working With the School Team
Chapter 9: The Cone Zone: Setting Healthy Boundaries
Chapter . When Your Journey Includes Hospital Stays
Chapter . The Journey Through Death and Beyond
Chapter 2. Concluding Thoughts: Building Resilience on the Journey
Resources for Your Journey
Notes
About the Authors

About the Author

Frank J. Sileo, Ph.D., is a New Jersey licensed psychologist, an award-winning author, and national and international speaker.  He is the founder and executive director of The Center for Psychological Enhancement, LLC, in Ridgewood, New Jersey, where he works with children, adolescents, adults, and families. Since 2 , he has been consistently recognized as one of New Jersey amp rsquo s top kids amp rsquo doctors. He is often the amp ldquo go-to amp rdquo psychologist in the media for his insights on health issues and parenting. Dr. Sileo lives in Ridgewood, New Jersey. Learn more: www.drfranksileo.com

Carol S. Potter, MFT, is a Licensed Marriage and Family Therapist. In her practice she has worked with individuals, families, and couples, as well as children and adolescents in school settings, and facilitated both bereavement, and anger management groups. She helped develop the strengths-oriented Best Practice Parenting program for the Southern California Counseling Center. An active advocate for women survivors of domestic violence she was honored by Sojourn as the Woman of the Year in 994. Ms. Potter played Cindy Walsh, one of television amp rsquo s most beloved mothers, on Beverly Hills 9 2 . She lives in Los Angeles, California. Learn more: www.carolpotter.net.

Reviews

Psychologist Sileo and family therapist Potter prove to be profoundly sympathetic guides in this take on the 'unexpected journey' of having a child who is diagnosed with a chronic or terminal illness amp hellip Sileo and Potter offer realistic comfort and directly applicable skill-building in equal measure. The wise advice and helpful tips will leave parents feeling well-equipped to face steep challenges.
  (Publishers Weekly) When Your Child Has A Chronic Medical Illness helps to show the need for caregivers to treat themselves humanely and with compassion. It is a godsend for anyone seeking guidance and tools for assistance in navigating the many challenges that arise within themselves, their caregiving support circle, the medical and social program arenas. It shines a light on difficult and confusing subjects with real tools for a reader to take from the book with comprehensive charts and easy to understand advice to help with the many issues that may be encountered. Dr. Sileo and Carol show us not only why, but also how, to practice self-empathy to help with the journey of caring for a child with a chronic illness. Finally, this book can help caregivers reaffirm their purpose with appropriate self-care and experience the beauty and transformation this pilgrimage will provide. (Dream Street Foundation)