Table of Contents

A. FOUNDATIONS OF CARE; 1. Development & epidemiology; 2. The child's journey; 3. Communications; 4. Ethics; B. CHILD AND FAMILY CARE; 5. Creative lens; 6. Spiritual life; 7. Children's views on death; 8. Psychological impact of life-limiting conditions; 9. Adolescents and young adults; 10. Children expressing themselves; 11. School; 12. Child and family assessment; 13. Impact of life-limiting conditions on the family; 14. After the child's death; 15. Bereavement; 16. Ritual and religion; C. SYMPTOM CARE; 17. Symptoms in life-limiting illness; 18. Using medications; 19. Pain - an introduction; 20. Pain - assessment; 21. Pain - pharmacological management; 22. Pain - an integrative approach; 23. Gastrointestinal symptoms; 24. Feeding and nutrition; 25. Depression, anxiety and agitation; 26. Neurological and neuromuscular symptoms; 27. Respiratory symptoms; 28. Skin symptoms; 29. Haematological symptoms; 30. HIV and AIDS; 31. Complementary and alternative medicine; 32. Symptom control at the end of life; D. DELIVERY OF CARE; 33. Working as a team; 34. Healthcare providers' responses to the death of a child; 35. Place of care; 36. Intensive care units; 37. International aspects; 38. Quality assurance; 39. Education and training; 40. Research; APPENDICES; 1. Drug doses

About the Author

Dr Stephen Liben is involved as a founding member of The Lighthouse, a non-profit foundation whose mission is to build a respite/hospice center for children with complex illness and their families in Montreal. His research is focused on better understanding the experience of children with life limiting illness and their families.

Dr Liben is on the editorial board of The American Journal of Hospice & Palliative Care.

Reviews

Following in the footsteps of the Oxford Textbook of Palliative Medicine, here is a comprehensive textbook covering all aspects of paediatric palliative care...The speciality of paediatric palliative care is barely 25 years old and this book is a testament to how far it has developed...Like its adult counterpart, this book will be the gold standard for paediatric palliative care and deserves a place in every department of paediatrics and hospices that care for children. Roger Woodruff, Director of Palliative Care, Austin Health, Melbourne, Australia ...for the novice practitioner, this will allow one to build knowledge around the foundation of care, and will help the expert specialist practitioner to enhance and update one's expertise. ... It is recommended that all paediatric palliative care specialist practitioners should have a copy. Oncology News The specialty of paediatric palliative care is barely 25 years old and this book is a testament to how far it has developed. ... Like its adult counterpart, this book will be the gold standard for paediatric palliative care and deserves a place in every department of paediatrics and hospices that care for children. IAHPC Newsroom