Lucidly and expansively addresses the myriad of bioethical, legal, cultural, and socio-economic issues deriving from advances in genome biology and genomic medicine
1. Preface: Genomics and Society – A Visionary Approach
2. Personal Genomics and its Sociotechnical Transformations
3. Genetics, Genomics and Society: Challenges and Choices
4. Genomics and patient empowerment
5. Ethical issues in Health and Social Genomics
6. Health economic perspectives of genomics
7. Legal aspects of health applications of genomics
8. Genomics, Patents and Human Rights
9. Teaching genetics and genomics for social and lay
professionals
10. Engaging and empowering public and professionals in
genomics
11. The ‘life costs’ of living with rare genetic diseases
12. The bioeconomy, genomics and Society
13. Socio-economic outcomes of genomics in the developing world
14. Roles of genomics in addressing global food security
15. The integration of genomics in the traditional Indian medical
practice of Ayurveda
17. Genomics and Traditional Chinese Medicine
18. Human genetics and genomics and the socio-cultural beliefs and
practices in South Africa
19. Genomics and Spirituality
20. The socio-demographic and economic correlates of consanguineous
marriages in highly consanguineous populations
21. The international law and regulation of medical genetics and
genomics
Professor Kumar has considerable previous experience in writing and
editing books and journals related to genetics and genomics. His
books include Genomics and Clinical Medicine and Genomics and
Health in the Developing World. He founded and leads the new open
access journal Applied and Translational Genomics, published by
Elsevier. He has published 40 articles in the journals literature.
Professor Dhavendra Kumar is a Visiting Professor, Genomic Policy
Unit, Faculty of Life Sciences and Education, The University of
South Wales and Consultant in Clinical Genetics at the University
Hospital of Wales, Institute of Medical Genetics, Cardiff
University, Cardiff, United Kingdom. He is one of the Consultants
for the All Wales Medical Genetics Service and the lead Clinician
for Clinical Cardiovascular Genetics. After qualifying in Medicine
from the King George’s Medical College, University of Lucknow,
India, he completed postgraduate training in Pediatrics with an MD.
Since 1980 he has pursued a career in Medical Genetics in the UK.
In 1990 he became a Diplomate of the American Board of Medical
Genetics. He is a Fellow of the American College of Medical
Genetics (FACMG) and as well as Royal Colleges of Physicians
(FRCP-London and FRCP-Ireland) and Pediatrics and Child Health
(FRCPCH-UK).
In 2015, he was conferred with the higher degree of DSc by his Alma
Mater, King George’s Medical University, Lucknow (UP, India) based
on his life-time contributions and achievements to genetic and
genomic applications in medicine and health.
Ruth Chadwick is Distinguished Research Professor and Director of
the ESRC (Economic and Social Sciences Research Council) Centre for
Economic and Social Aspects of Genomics (Cesagen), at Cardiff
University, UK and Link Chair between Cardiff Law School and the
School of English, Communication and Philosophy (ENCAP). Professor
Chadwick has coordinated a number of projects funded by the
European Commission, including the EUROSCREEN projects and co-edits
the journal Bioethics and the online journal Genomics, Society and
Policy. She is Chair of the Human Genome Organisation Committee on
Ethics, Law and Society, and has served as a member of several
policy-making and advisory bodies, including the Panel of Eminent
Ethical Experts of the Food and Agriculture Organisation of the
United Nations (FAO), and the UK Advisory Committee on Novel Foods
and Processes (ACNFP). She was editor-in-chief of the first edition
of the award winning Encyclopedia of Applied Ethics. She is an
Academician of the Academy of Social Sciences and a Fellow of the
Hastings Center, New York; of the Royal Society of Arts; and of the
Royal Society of Medicine. In 2005 she was the winner of the World
Technology Network Award for Ethics for her work on the
relationship between scientific developments and ethical
frameworks. She graduated with first class Honours Literae
Humaniores (Philosophy and Greek and Latin Literature) from the
University of Oxford, and then went on to take the B.Phil. in
Philosophy. She was awarded her D.Phil. on The Ethics of Eugenics
and Genetic Engineering, supervised by Jonathan Glover. She
completed an LL.B. (externally) at the University of London. She
held positions at the University of Liverpool, St. Martins College,
Lancaster, and University of Wales, Cardiff, before taking up her
post as Professor of Moral Philosophy at the University of Central
Lancashire. In June 1995 she became Head of the Centre for
Professional Ethics at the University, a position she still holds.
She has coordinated a number of multinational and multidisciplinary
research projects funded by the European Union: Ethical
Implications of Human Genome Analysis for Clinical Practice in
Medical Genetics, with Special Reference to Genetic Counselling
(1992); EUROSCREEN: Genetic Screening--Ethical and Philosophical
Perspectives (1994–1996); BIOCULT: Cultural and Social Objections
to Biotechnology, with Special Reference to the View of Young
People (1995); EUROSCREEN 2: Genetic Screening--Towards Community
Policy on Insurance, Commercialisation and Public Awareness
(1996–1999). Her publications include the four volume edited
collection, Kant: Critical Assessments (1992); Ethics, Reproduction
and Genetic Control (Revised Edition, 1992);and a large number of
papers in learned journals. She is joint series editor of the
Routledge series on Professional Ethics. Professor Chadwick is
secretary of the International Association of Bioethics and a
member of the HUGO Ethics committee, the National Committee for
Philosophy and the British Medical Association Steering Group on
Human Genetics.
"...provides a remarkably broad overview of its [genomics'] implications in various sectors of the society, ranging from questions on how clinical genetics services may contribute to the empowerment of patients to questions about economic assessment of these genetic services and biotechnological applications." --European Journal of Human Genetics
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